ONE.

If I had ONE wish,
it would be for you to be here
and it will always be that wish,
ALWAYS..

ONE! One Henry, one, a number, a word, an age…… When people ask “How old is your little one?” a question I had recently from someone I didn’t know I should be saying “Almost one” yet my answer was “he passed away”. I cannot believe that it has been almost 12 months since we said our hello and goodbyes all at once. How can it be that we are here, at a time when I should be planning what presents to buy, how to spoil you, I am trying to work out how we still celebrate you, your day while feeling so many emotions all at once.

One, a number that goes through my mind, one can be applied to so many things, how I wish we had one more day with you, one more moment, one minute, hour, month, year….. One..

I haven’t written for almost one month, not because I have not wanted to, but as you know little Henry your little brother or sister is on the way… You are going to be a big brother, not our only baby and while that makes me so incredibly happy, just typing that right now brings tears that sting straight to my eyes as the overwhelm and sadness that I feel that your little brother or sister will never get to hold your hand, they will never learn to walk by pushing you around, they’ll never have to fight us for your attention, they’ll never have you here to confide in, plan with, play, they will never argue with you, steal your things, all those moments we experience with our siblings they don’t get too. That just absolutely breaks my heart all over again when I didn’t think it could break anymore.

This pregnancy like yours hasn’t been easy Henry, I have been so incredibly sick again, hospitalised for fluids after days of keeping nothing down, trying to juggle grief, feelings of a new pregnancy, sickness and others not knowing as we were too scared to say anything, its made it incredibly hard, that’s why it has been hard to write, to put down words when you are trying to just get through a work day without vomiting, trying to eat something in the hope you’ll keep it down all while between each appointment, each scan wondering will everything be ok, will it or will this little one be taken from us too, and then trying to allow the emotions that come along with missing you.

Plus each day that edges closer to April, to the month when you were born, I feel like I have been taken back, I feel like this all happened yesterday, the emotions have surfaced, they have come right out and are spilling over like a volcano erupting, I have dreams all the time, dreams of being left alone, dreams of being in the dark of wanting help and no one there. When I wake as soon as I do every day right now I am taken back to that moment of finally being checked on and them finally putting the monitor on and there being nothing, no sound, silence where there should have been the strong beat of your heart like there was the day before, I am reliving that moment every morning so vividly in my mind as soon as I wake it is there.

I find myself Henry feeling more like I did some early days, unable to always respond to texts and messages, more and more it’s so much effort to get out of bed in the morning to want to do the day, I’ve had moments small things that I wouldn’t normally react to have affected me. My anxiety has been high.

I want to bake a cake for your birthday, I want to make it chocolate as you loved chocolate when I was pregnant, whenever I ate it without fail you would always react, there would be movement or a kick that would make both your Dad and I laugh, we always joked when I was pregnant that you had your Dads taste in foods and not mine. So I want the cake to be chocolate, I have been ok with thinking about your cake so far until yesterday. I couldn’t decide what I would do with the cake how I would decorate it, so I started looking for ideas, I started to develop one in my mind of how it may look of what it may be and then as I did so I thought ‘How do I choose a cake to decorate for you when all I want is you here?’ ‘what will represent you or be good enough’ I should be planning this cake with you here, for your 1st birthday party with our family and friends, I should be looking at doing a cake that represents the traits and little personality you have developed with us caring for you over the past twelve months, how do I do the perfect cake for you when we don’t have all that where the time we held you in our arms was limited, when you never got to come home. I texted a friend and said to her “How do you decide on a ‘1st birthday’ cake when all you really want is them here.

One that number wont leave me right now. The thing is every year there’ll be a number, we still have lots of firsts to get through, not only your birthday but then the day we said until we meet again, that is another one of those firsts, but soon we start the seconds too. There’ll be my second mothers day without you and so on and I am not sure having been through it once makes it any easier, my first mothers day was within weeks of you being born, I was still in so much shock over what had happened, does that mean my reaction will be worse this year or just different I guess, the fact is we will face the years and they will bring their own challenges, one, two, three, four, five etc you would have started school at five, there’ll always be a milestone we are missing out on.

“This is just what you need” I have had some people say to me about this pregnancy, like they think us having your sibling will somehow replace you, like having your sibling may ‘fix’ us. No other child no matter how many siblings we have could ever replace you, it’s not what ‘we need’ as what we need is you. I do say however that a sibling of course is going to bring us joy as parents. It will add to the love we have and feel just as they would if you were here. It will bring with it challenges of feeling all we will seeing this little one grow and change and realising more of what we missed with you, of trying to be good parents to both of you the one in our arms and the one in our heart.

As I sat in a psychologist session the other day she asked me Henry if your Dad and I had begun to talk about what we might be looking forward to with this baby, I instantly felt so much sadness, just absolute pure sadness as I answered her “No” I told her why I felt sad, I felt sad we hadn’t been able to do that as we can’t focus past day by day sometimes and knowing if we get to take this baby home. All we say is we look forward to is having them safely in our arms, we haven’t been able to talk past that and it makes me so incredibly sad as with you we talked of the future all the time, we talked about the adventures we wanted to take with you, how we would first take you to the beach, where we wanted to take you away too, how we wanted to once you were older travel with you around Australia, we talked about Friday nights at home snuggling together and playing Lego as you grew, about days spent having picnics in the sunshine, about summer nights spent walking to see the sunset, we talked about how we wanted you to experience the outdoors, about what foods you might like, we talked about the things we would buy you as your grew, about how we’d be as parents we really talked about it all and now I find it hard to imagine that we might get to do any of that with this little one, so we have been unable to talk about any of it at all.

She discussed with me how that’s ok, how it’s completely ok to feel how we were feeling, how valid that was and to acknowledge that, but it still made me so sad we can’t see that, we cant talk about that or have those same feelings and excitement that we did with you.

The days feel like months Henry when it comes to even thinking we are getting close to your sibling being here, each day I battle between feeling hope and feeling helpless, feeling happy and feeling sad, feeling grateful and angry, I am getting used to so many emotions coexisting as they always will now. In a way I feel like I live in two separate worlds at the exact same time. Then there is the guilt that bears down on me so heavily, one where I feel bad we can not seem to get excited like we had with you, as doesn’t this baby deserve that too, I have moments where this little one moves and kicks and your Dad and I look in awe still, then we go to scans and while we are always happy to see a heartbeat the scans often come with tears too as we remember our scans with you. We go between these moments.

If I am honest Henry pregnancy after losing you is even tougher than I ever imagined it to be, I wish some days we could go back to the naivety we had in our pregnancy with you of thinking we get to take this baby home too, but that’s no longer our reality, we wont fully believe that until it happens, we can’t look at it that way as we have experienced what we didn’t think was possible. It is a juggling act and if I am honest I never really learnt to juggle Henry, yet here we are we throw the balls in the air trying to catch them and keep them going but then they all fall and hit the ground as we aren’t quick enough each time we turn a corner a new ball is added, a different emotion, a memory, something to do with this pregnancy will trigger an emotion from the trauma we have experienced. I could never be a clown in the circus Henry, I never feel like I will ever learn to juggle, perhaps I’d be better suited to being the one who gets dunked in the water, although I am not great at keeping my head above the water either.

We have made some progress on your garden, which has brought me some joy, it seems to be one of the only times I don’t think too much these days when I am there creating this space for you. Your Dad finished the screen something I had been to unwell to assist with. We recently added soil, I fixed the dry creek bed, we added some native grass and then your Dad and I built something special for your little sibling, we went and got special sand crushed terracotta and some other stuff I can’t remember the name of right now (cue my mum/pregnancy brain) and we created a little tonic truck park, something I hope you would have loved and something your sibling can play with when they are old enough. It is looking great, we just need to add some turf, some other plants and something to sit on.. I hope we get it done within the month.

As I sat for a moment the other day Henry, I remembered taking that pregnancy test with you, how clearly the line showed up straight away, the way I was in shock as it was so unexpected, my panic about trying to make it special for your Dad, I remember the exact date, all the different thoughts, of the things that went through my mind, it made me smile to think about how we went from shock and not knowing to how we talked so fondly about wanting to be your Mum and Dad and how we wanted to raise you. I only hope we can be even better parents than we imagined to you and your sibling.

As we approach the next month and all that comes with it, as we get closer to that one day! Your 1st Birthday. Whatever surfaces, whatever we are feeling, I want you to know this. I’m so incredibly grateful for you, I’m so incredibly blessed to have carried you, to be chosen as your Mum. I wouldn’t change that experience and all the joy and how you have changed us for anything in the world. I may struggle, I may fall, I may feel things that are hard and tough to feel and I do at times miss the people your Dad and I were, but you beautiful boy have also brought so much to us and our lives. I promise to live mine for you. Always loving you.

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Author: Letters to Henry

My husband and I live on the beautiful south coast of NSW, Australia. We are currently learning to rebuild and navigate through life after the loss of our son Henry to stillbirth due to medical negligence in April of this year.

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