Arthur and Martha or is it Ian and Eileen?

I’m tired Henry, this week I have kept myself incredibly busy and I am tired, I am not sleeping and I am tired and I’m both mentally and physically just tired, how I wish so very much this tiredness was due to me looking after you and not from this grief, I really need some rest, some sleep.

This morning after three busy days Henry I lay in bed, I lay in bed and just let the tears flow, thoughts of who you’d be, how old you would be now, what you would be doing, your personality, what would make you laugh? what would make you cry? would you like the water like we had wanted you too? all of those thoughts swirl and swirl and swirl around again like the tornado in my mind, they keep going and I can’t stop them, I will always wonder for the rest of my life who you would have been.

I look at your pictures, oh that nose, that little nose of yours, that hair it gets me every time, I think you are just so beautiful, just perfect, I still remember that when you were born and placed on to my chest those amazing feelings of look at you! Look at this perfect beautiful amazing boy we created, its feelings of pride of love tinged with the hurt of not being able to take you home of never getting to hear that cry.

I had a beautiful friend message me this morning, 3:30am this morning mind you but I didn’t see it until later on when I woke up.. ‘I dreamt about Henry being a number 5 in numerology, you find out you are pregnant in Henry’s 5th month, on the 5th of September, you are due in may the 5th month, 5 is the shape of a pregnant lady and 5 is also one of my favourite numbers she says…. and at the end of the message I hope there will not be 5!!…. wow I thought as I read that message…… lets hope so, as September you would have been 5 months old, my next cycle begins just before 5th September, I would be due in May if I fell pregnant then, 5 is the shape of a pregnant lady…    and heck Henry if you wanted to send us five siblings well I would take them all! ‘Send all the babies’ as another friend and I joke.

Positive ovulation tests this week, your Dad and I are doing all we are supposed too, I am trying to be mindful, trying to be positive about it as much as one can in our circumstances and well I haven’t tried standing on my head yet but I can not find any concrete evidence to say that’s a proved method to help.

Your Dad has kept me laughing where he can especially after the discussion about his drunk sperm, I told him he can’t be drinking too much his sperm will be drunk, he then decided after several drinks to reenact for me what his drunk sperm would be like, I could try to explain this, I could try and put it in to words Henry, but I think it’s just best I leave it with the actual video itself, I sort of half have permission from your Dad to post it so I think I am just going to go ahead with that half permission… I am sure you’d agree.. Although if his sperm is trying to swim like this we have no hope 😮

The Chinese medicine acupuncture lady I have been seeing is called Irene, your Dad keeps telling me about this song ‘come on Irene’, I have had no idea what is talking about he finally played the song for me the other night just before we went to jump in to bed, turns out it’s actually ‘come on Eileen’ “Does that mean we could make an Eileen tonight?” I said to your Dad “Arrrrr” he screamed in Homer Simpson fashion “come on Ian” he began to sing… Arthur, Martha, Ian, Eileen… You better send us half a soccer team.

As we laid in bed it was so cold Henry, so damn cold, our air conditioner has decided the heating part is no longer going to work properly with it only blowing cold air… so as we jumped in to bed flannelette sheets, and our pyjamas and socks on… I cuddled in to your Dad “hmm how are we supposed to do this?” I asked “I’d like to touch you but my hands are too cold” I said “don’t you touch me without warming your hands up” your dad replied… “perhaps we need knitted onesies” your dad suggested “With holes for our doodles” …. “our doodles?” I asked laughing “Well no one for mine and a hole down below towards the back a little for you…… and one for your mouth” your Dad replied, cue  my inappropriate laughter here Henry “For you to breathe” your Dad said realising where his comment had led but it was too late, but at least we were laughing….. there’ll be no knitted onesies Henry I can assure you of that.

The days are all so different Henry, I have had days this week where I felt ok, then Tuesday afternoon after being busy for the day I found myself crippled by the pain, I couldn’t move, I lay down on the bed crying and crying the tears wouldn’t stop… I could feel it, feel it all throughout my body, grief Henry this grief is physical my body aches, it longs for a baby it thinks it should be looking after, my arms wonder why I am not holding you, my chest aches to hold you close, my eyes look for you, my ears listen out for cries I will never hear, my lips long to kiss your sweet face, my nose tries to seek out that smell of you as newborn baby, my stomach these feelings all sit in my stomach and it aches too, for the baby it held for 9 months, the little boy who should be here, for you.

The other day while in the car Henry an Angus and Julia Stone song ‘Other things’ came on, I had a little giggle at this as when we had been trying to choose songs for your service in those really difficult raw moments your Dad played the intro to that song, just the music part “What about this?” he had suggested, “ummmmmm you know the first line to that song is ‘go put the cat outside’ kinda not appropriate” and we had laughed a little, as the song was on I decided to listen to more of the words lines such as ‘theres a plane in the sky if those people fall they will die’ and ‘I’ll see you later tomorrow’ I thought to myself oh my gosh Henry could you imagine if we played that song…. I told your Dad about those lines when I got home and we had a little laugh.

I sit, I try, I remind myself of what we need to do, it still doesn’t stop that feeling of sometimes just wanting to be with you, where you are, you are my child, my baby of course I want to be with you, it’s where my heart says I should be, I just keep trying keep thinking of your Dad, your fur sisters and your future siblings and that’s what keeps me here, I wish there was some way, some way we could visit with you, how wonderful it would be to hold you to me once more.

Today Henry I was able to spread the story of another little boy, one gone too soon, his mum had created some cards to spread Simon’s smile.. she sent me some with a gift, so today I did my first random act of kindness paying for the next persons coffee and leaving a card with it, so that person may then spread that random act of kindness on to someone else. I had a bad morning so it was nice to do this to possibly add that kindness to someone else’s day.

I have an idea for a few other things I want to do in your name, but I have to make a few things first, so its been taking a little time to put together but I will get there, I will be sure to let everyone know once I do..

Its edging closer and closer to fathers day Henry, I was talking to my psychologist today about this, I am feeling so much emotion for your Dad about approaching this day, within the week leading up to fathers day last year we found out we were expecting you, I am not sure what to do for your dad on this day, does he want to go out but be amongst families everywhere, does he want to stay home and hide? I don’t know… I want to ask but I don’t want to upset him, I know I write a lot to you about how I am feeling, but I think of how your dad s feeling and coping all of the time, I often want to do all I can to ease the pain for him, even though I know this pain really can not be eased… I suppose all I can do Henry is put it out there now, to others, that your Dad is grieving too, it doesn’t go away for Dad’s they feel it for the rest of their lives too. I know your Dad doesn’t read this, but I hope that I can put out there now, so that maybe he might get a message to ask ‘how you going mate?’ or maybe friends can remember to say to him ‘happy fathers day’ as he is a Dad, he is your Dad… This Sunday Henry is ‘International Bereaved Fathers day’ hopefully I can cook him some breakfast and remind him of the wonderful Dad he is and will be in the future. I only hope others can acknowledge him as a father on father’s day, even if he doesn’t respond on the day.

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I know Henry, how hard your Dad works to stay strong, I know how much he does to support me, I know how exhausted he is from working and trying to deal with navigating grief, I know he often wakes at 2:30am this is when he cries his tears, this is when his thoughts drift to how much he misses you, I know he says to me ‘It’s damn hard’ and I know he has even had to through his line of work listen and see some things lately and bite his tongue not to respond. I don’t know how he does it, but he does… I know you already know this Henry but I think your Dad is so absolutely amazing and wonderful, he loves you so incredibly much. You may have his ears…. but I know what an amazing role model he would have been for you growing up.

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Learning to surf.

You can’t stop the waves, but you can learn to surf.

Days go by Henry, they pass, they keep going and sometimes I don’t think they should. sometimes I want the days to stop, how can they keep going when I don’t want too, on the days where lying in bed seems like the best option? not that I have done that yet as I haven’t, Everyday I have made sure there is something I am getting up for, I make appointments, commitments, things to do… so I always get up and I do them.

Your Dad he goes to work, he gets up and goes and does what he needs to until he comes home again, and we stop, we hug and not want to let each other go, sometimes we cry, sometimes we are able to sit have dinner, talk, watch tv, and even laugh, we mention your name each day and we say goodnight to the stars every night.

I still wonder Henry how, how could this have happened, how do so many mistakes happen in succession to cause this… How does someone who is allocated and responsible to check on a patient just not even bother? How do they just ignore that duty and say ‘oh I thought they were sleeping’, and how does another ignore you when they come to attend to you, dismiss your concerns, be abrupt, give you something they shouldn’t… How do people in these roles who are responsible for caring for and looking after and responsible for people’s lives do this? and again why to us? If only they knew, if only they knew how long I waited for you, how your Dad and I just wanted to give you the best life and take you places and do things with you, if only they knew the absolute shattering pain we live with everyday… but they don’t. I can only hope through the process of addressing our complaint that these people will now think twice about their actions and ensure they do their jobs correctly next time.

I want to say to people Henry, I want to say if I don’t message you back straight away I am sorry, if I don’t always reply I’m sorry, but I appreciate messages that are sent, thoughts etc I just don’t always have it in me, sometimes I am so busy trying to make it through the day.

I want to be that mum Henry, I want to be the mum that’s taking you to the mums group at the cafe with the beautiful outdoor area, the mum thats sharing pictures of you in the sun, the mum thats posting your milestones of smiling, crawling, talking, first foods, the mum who is sharing the funny pictures, moments and the not so funny ones, the one thats showing her baby proudly off to her friends saying look at this little human of mine… but I am not that mum.

I can only share so many photographs of you Henry as we only have a limited amount, I can only share so many memories and most of those don’t mean as much to people as they are memories of you growing in my belly. I think of when my dad passed, I was sad Henry, I still miss him but it is so different, with him Henry I can share memories of what we did, I can hear things from others who knew him, they share their stories, I know he lived a good life although not as long as some others. With you, you didn’t get that chance at life here with us, and no one has memories of you they can share with your dad and I. I wonder how do I share as a mother? like every mum wants to when I can not create the memories with you.

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Firsts Henry, firsts again, I had a beautiful friend message me to tell me she was pregnant, I am so incredibly happy for her Henry, so so happy, but after I replied to her message to let her know what wonderful news that was instantly hot tears fell from my eyes, thick and fast and I couldn’t stop them, not because I am not happy for her because I am Henry, but because it is almost one year since I got that positive pregnancy test with you, then I carried you, despite the sickness I had a good pregnancy, it just brought me back to all of that and the fact you should be here, then it also reminded me of the fact I am not pregnant now, and that when I am pregnant with your siblings how hard that will be, how much worry, concern, anxiety there will be, how I will never get to experience pregnancy with the full joy of it just being a happy time, I won’t be able to relax until those babies are crying in my arms.

I am glad Henry, I am glad my friend told me, I am pleased she thought of me and wanted too, I don’t want people to hold back, I want them to say the things they normally would.. I just have to ride the waves of emotion which will come with that, I have to realise there will be triggers, tonight I saw photos on Facebook of another friends baby shower and that brought with it a sting too as I saw her beautiful smile, the happiness in her eyes, I remember I was that happy once, I had that look in my eye, that excitement, wonder and it will never be that way for us again, and I grieve that too. I look at our maternity photos and I look at the laughter, the anticipation, the absolute joy we had for you, I grieve that we no longer have that joy, that laughter, that happiness, those plans.

I hope when it happens again, when I am pregnant with your siblings, I hope our friends can celebrate with me, I also hope they can support us through the tough moments too, through the anxiety, through the pain, triggers and reminders. I want so badly when that happens to try to still enjoy as much of it as I can.

The past week Henry brought with it a rollercoaster of emotions, I have been ok, and I have been completely down, I have spent time busy and I have spent some much-needed time at home, one thing I came to realise within this past week Henry is that I need that time, the time where I am home, where I can break, where I can let the tears fall, where I can let the anger out. I came to the realisation of a cycle I am currently in Henry, one where I keep myself incredibly busy as busy as I can to avoid the feelings that come along with grieving you, I then finally stop, I stop being busy and I start to feel those feelings, I don’t like those feelings as they are hard, they hurt a lot so I begin to try to get rid of them and I tell myself, ‘you should be getting better’, ‘people think you are too sad’, ‘you need to be doing more’ etc etc and so then I judge the feelings trying to stop them and I go back to keeping myself busy and the cycle starts again….

The only way I am going to incorporate this in to my life, these feelings, this grief and change how it sits with me is if I start to allow myself to feel them, without judgement, without pressure just let them be what they are and as they are, recognise it and then go with it, slowly over time, so very slowly things will shift, I will always miss you, I will always want you here, I will always love you, but I will also learn how to live with that in a way in which I can honour you and live a good life, but that starts with getting through the hard stuff now.

I haven’t quite learnt to surf in real life Henry, while I was pregnant with you I managed to ride some waves in on my knees, I always held back a little, even before falling pregnant with you I always had doubts fears about what happened if I stood up on the board but fell, really the answer to that is I would have fallen in the water and then brushed the salt water from my face got back on the board and tried again. This is what I need to do now as I surf the waves of grief and the emotions that come with that, if I fall from the board because the waves are to big or to rough, I just need to see them through until I can get back up and try again… perhaps one day I’ll surf like a pro and learn to tame some waves.

I have found myself lately Henry really trying, I have been trying to change the language that I use, instead of saying to your Dad I feel like I am a burden on him as he seems to have it all together and I feel like I am falling apart, I say ‘Thank you for being there for me’, Instead of saying I don’t know if I will ever fall pregnant with siblings for you I have begun to say ‘when I fall pregnant….’, instead of saying I shouldn’t be sad, I say ‘I am sad and that’s ok’, instead of thinking I am alone, I am trying to change to remind myself I can reach out to our friends anytime even when I dont know what to say.

There’s no right or wrong way to navigate this Henry, I think at times first waking up and realising our reality still exists is the hardest and then going to bed at night,I woke at 1am this morning, flashbacks from the hospital filled my mind, I could even physically feel the contractions I had at the hospital as this went through my mind, grounding techniques I tried, I tried to focus on things in the room I could feel, I tried to focus on the sounds I could hear to bring myself completely back to the present, it took a while and I finally got back to sleep, but then when I woke up and the realisation hit I was also so exhausted.

When I woke this morning I really struggled to want to get up and face the day, I lay in bed knowing I needed to get up experiencing the physical aspects of this grief as well as the emotional ones and I wrote the following words:

Every morning I wake up, it’s there, it’s instant… that realisation, the longing, the hurt, the love.

It’s heavy, I feel it in my chest, my limbs, my whole body has a heaviness.

I fight, I fight with myself in my mind telling myself the reasons I need to get up, to keep going..

I’m always tired.. it doesn’t matter how little or how much sleep I get I’m physically tired everyday.

Every morning, the same struggle, the same feelings, it’s all the same. I want you, I need you, I can’t have you, I miss you, I ache for you, I long for you, you are mine and I question what is this life without you… my baby boy.

I struggle, yet I get up to battle with another day, even when my armour weighs me down.

I wish I could take the armour off and stop the battle, give in, surrender.

I won’t give in though, I will keep going, I won’t give in as I will keep fighting for you, for your Dad and I, at least I will try, I will try for your siblings who I know you will send our way, I will try for your fur sisters, I will try for our family, our friends as hard as it all is I will try.

If only you knew how you have stolen my heart, if only you knew how much I loved you from the very start, if only you knew what you mean to me, if only you knew how you have forever changed my life, I wish you were here to see.

I love you.

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